Just leave a comment if you're COVID long hauler. In other words, if you had COVID and have symptoms 3+ months later. Also mention symptoms, blood type (if you know it) and any odd health quirks you had before COVID

Want to do personal research, will share my insights.

So far what they know is that Long-term COVID is extremely linked to Mast Cell Activation Syndrome (MCAS). MCAS has many similar symptoms as LH, and both have sense of smell implicated--aspirin is said to fix this in MCAS. MCAS patients who were already being treated for MCAS this year did not develop COVID, so that's the smoking gun.

I personally had it in March, still have symptoms. Mainly POTS tachycardia, especially while peeing. Also big O2 drops that go back to 99--these are worse when I haven't eaten carbs. Also recurring hemorrhoids that come and go in cycles.

I also have MCAS symptoms since puberty (27 now). Prickly itching sensations with spicy foods, pain in my hair follicles, random burning in my eyes, many others too. Most of these would go away in a matter of minutes so I never seeked medical help for them.

  • WojackHorseman [none/use name]
    ·
    4 years ago

    I had COVID about a month and a half ago. I haven’t noticed too many long term symptoms as of yet but I have had tighter lungs than i usually do.

    I don’t know if it’s a coincidence cuz I’ve also had uncharacteristically bad allergies/sinus problems this season (I always have bad allergies but it’s been crazy bad the last 2-3 months).

    But yea a bit of difficulty catching full breaths but that’s all I’ve noticed thus far

  • Z1ML [he/him]
    ·
    4 years ago

    I never got tested for covid but I think I had it in June. Initially the symptoms were fatigue, weird sensations and sudden pain all around my body(I still have these) especially in my abdomen and back area. The fatigue went away and I started having severe constipation that went on for weeks(it kinda went away then came back) . After that I never had a normal digestive system, always have pain in my abdominal area etc. About 2 months ago I went to minute clinic and I was told my breathing was fine, blood pressure, oxygen etc was okay. Then I started having very heavy headaches, and I had insomnia for a month or so. One weird thing is my back pain, so a couple of years ago I fell on my back and hurt the lower tip of back bone. It was painful for a while but it went away. Now after I had covid the pain came back in that area, and I can't sit properly now. My main problem now is the back pain, recurrent constipation and abdominal pain and headaches.(i started having peeing problem this week ). I never went to a doctor because the pains just go away in minutes. I never had smelling issues(already had partials mell loss from sinus infection in my childhood ). I hope this helps.

  • qublics [they/them,she/her]
    ·
    4 years ago

    (no known COVID infection)

    i'm not a doctor, but if i was your doctor, would try supplementing potassium (prefer avocados, spinach, potatoes) just to see what happens.

    tachycardia with peeing sounds like electrolyte issues, most likely losing too much potassium.

    possibly you're not eating too little carbs, but too much salt instead. sodium is like opposite potassium.
    in any case, amount of carbs is irrelevant, what matters is glycemic index and insulin spikes.

    angiotensin-converting enzyme (ACE) is needed for kidney function and directly involved with COVID.
    other common cause of low potassium is diarrhea; but it can show up in many situations.

    MCAS seems plausible, but idk anything about that.
    but if MCAS causes long term COVID then I would suspect kidney damage as complication.

    although, if it is more general kidney damage, electrolyte drink (no sugar because insulin spikes) could be better than just potassium, absorbs faster anyway.
    effects should be obvious within fifteen minutes if electrolytes are part of the problem.

    "The true method of knowledge is experiment."