I didn't watch her channel, but this is a very detailed write-up about someone's experience with very extreme long covid. I wish we were doing more to find treatments for people suffering.

  • AernaLingus [any]
    hexbear
    10
    edit-2
    6 months ago

    We don’t want to get sick anymore, we don’t agree with the idea of the risk being worth the reward… what reward? Being able to have a mediocre dinner at an overpriced restaurant?

    It's so frustrating how hard it is to convey this to the people in my life. I was already a homebody before COVID. Sure, I'd occasionally go to the movies or to a restaurant with friends, but these were in no way vital activities for me (I'm neither a film buff nor a foodie). The thing I miss the most is probably live music, but even then I might have gone to one or two concerts per year, and I derive much greater satisfaction from playing music myself. The decision to give up these minor pleasures for an major increase in safety as well as peace of mind is a complete no-brainer for me. Obviously, the calculations will be different for other people, but even so, most people lack the understanding of COVID to truly understand the risks--one of the more insidious elements of "personal responsibility" rhetoric.

    I actually managed to set up a hike with some friends I haven't seen in a while, but even now I'm thinking about how I'm probably still going to mask since we'll be in close quarters talking and moving in a group and I'm dreading the comments. I hate how I not only have to worry about my safety, but also protecting the feelings of the vaxxed and relaxed when my mere existence reminds them that there's still a pandemic going on. Well, I guess I don't have to worry about that--in fact, I really need to work on completely owning my COVID posture and not feeling like I have to convince people of my sanity or bend over backwards to make them feel better.

    • nothx [any]
      hexbear
      5
      6 months ago

      That is exactly the struggle I’m dealing with at this point too. Standing by my convictions and masking in any setting that makes me uncomfortable or bailing on the whole thing. One example I’m that is especially stressful right now is the holidays. We are just getting over Covid and already changed our plans so we will be closer to home, but that doesn’t mean I all of a sudden want to be at my moms with 20 conservative family members. Getting the guilt trip over my decisions about this really sucks.