WHERE TO GET THE BOOK: http://libgen.is/book/index.php?md5=F6B31A8DAFD6BD39A5986833E66293E6
People have been kind enough to link the audiobook in past posts, so hopefully they'll do that here, too.
In this chapter, Dr. Price goes over those who are often found to be Autistics who discover that they have been masking their whole lives without realizing. Again, lots of Literally Me moments spread throughout for all to enjoy and cry about when traumatic memories you kinda just pushed down a long time ago come back up to the surface. Fun!
We're introduced to a few of these folks, starting with Bobbi. Bobbi is an autistic nonbinary person who was raised as a girl but never got clocked as autistic for their entire life until well into their thirties. Before that, they were just the weird kid who was shoved off to the side. Appropriately, Autistic women and gender minorities are the first group Dr. Price goes over, and how their misdiagnosis is often rooted in the "white boy who likes trains and talks like Rainman" stereotype of autism, and gender roles in general. He talks about "female Autism" and other such nonsense, and how being a social butterfly to compensate for Autism symptoms can lead to an internal life of incredible pain and needless self-sacrifice that goes completely unnoticed by everyone around the Autistic in question, and about his own gender transition as well.
After that, Dr. Price discusses the issues of ethnic minority Autistics, and how failing to mask can be downright dangerous for them, and how this necessity leads to terrible rates of underdiagnosis, and the overwhelming majority of therapists being white meaning they lack critical cultural context for the social aspects of treating Autism, not to mention how good ol' racism just turns them invisible to the people looking for more of those Sheldon Cooper types . And again, the necessity of masking and how it parallels code-switching, meaning that Black Autistics in particular get to navigate even more complicated social variables now, and if they don't they can end up imprisoned or dead.
After that, the outgoing Autistics who are highly verbal who are straight up told they don't have Autism to their faces becuause, you know, they're not so cringe that everybody feels okay being cruel to them without guilt. So though highly visible, their pain remains hidden, and people guilt them for it when they try to talk about it. More nuances on sensory seeking, predictability discussed.
Next, Dr. Price goes into an in-depth discussion of people with comordid conditions. ADHD is a big one (that's me!) and there's so much overlap between symptoms that some people think that they might very well be different expressions of the same thing. PTSD's another big one, and what's fun is lots of Autistic people also have PTSD from all the horrible treatment they've received from people their entire lives, including gaslighting therapists who try to "fix" them using ineffective therapies.
Lastly, there's that pesky "high functioning" label, basically "You can't be autistic because you're not a completely useless piece of shit! You can do a job that makes money, so you don't deserve to be scheduled for extermination!" There's lots to unpack in here, and I'm sure a lot of it is familiar to the people who are already interested in this book club. After that, some advice on seeking out fellow neurodivergents to find a community of similar people.
DISCUSSION:
- Any passages or quotes that stick out to you? Experiences similar to the ones described in this chapter?
- What hit you the hardest here?
- Was there anything about the communities featured in this chapter that you got new insight on? New things to relate to?
- Anything clarified in this chapter that relates to the last one for you?
Again, tag post to follow, and my thoughts later on once I have the time and energy.
The section on "female" autism really stuck out just because its just so frustrating to see how autism has been looked at within the gender binary. As a CIS man, there are so many of the listed traits for "female" autism that I fit into that it makes me wonder how a psychologist would have approached me if I ever tried getting a diagnosis in the past and maybe even now. It just makes me think of another way that gender norms can be so damaging to society and the need to move on from them in general.
As a POC, the experiences described here of having to put on a "nice and quite" mask. When I was in elementary school I got in trouble a few times because, as my mom described it, I often laughed at my friends' jokes the wrong time and was causing disturbances in the classroom. There was also another time when I was pull aside by a teacher's aide when I was playing "knights" with a couple of pencils and she told me I should play such violent games and pay more attention in class. Thankfully overall my experience in elementary school wasn't all that bad since most teachers and the principle were very nurturing, but it kind of sticks out in my mind reading this book now. Some of my more disruptive behaviors continued into middle school where I would often make sound effects to go along with what we were learning about. I don't really remember being corrected or called out on that behavior much since I was actually getting good grades, but at some point something kind of just clicked. I stopped making noises in class. Socially I always thought that I was open and friendly with most people, but recently I reconnected with a few of my middle school classmates on social media and they welcomed me into our school group, but also told me about how quite I was. I never really thought of it, but I also remember being bullied a bit for being a slow talker. I did have to take speech therapy while I was in elementary school, but I don't remember the exact reason though. But it probably contributed to my being so quite in social settings.
I continued with my "well behaved" persona in class into high school and through my time in college. I would still have outbursts of loudness and quirkiness whenever I was around friends, but I also started to isolate to a greater extreme starting in my sophomore year of HS. Even now I'm not entirely sure what triggered this. Maybe it was autistic burnout and I didn't really realize it. My friends would often tell me to stop being alone so much and invite me over to eat with them. The rest of my time in high school was a constant cycle of being comfortable enough to hang out with my friends during lunch and isolating myself. But everyone that I talked to during graduation and after always tells me I was such a nice and sweet guy even though I was a bit of a ghost, which got some people to nickname me Casper.
I kind of lost track a bit there lol, but kind of going back to POC specific examples, code-switching and its similarity to masking stuck out to me. I've kind of blended the way I speak in informal and formal setting to where often in social settings other POC comment on how "proper" I speak much in the same way Timotheus described. I clean up my language a bit more when I have to speak to higher-ups at work, but I feel like there isn't a ton of difference. At least when I speak English. When I speak Spanish its a bit more extreme. I still don't really quite speak like most people from my ancestral country, but at my old job my coworkers would point out how I spoke such proper Spanish when I was helping customers. I never really thought much about it. Growing up in the US bilingual I always felt my Spanish was a bit "broken" so I think I subconsciously made more of an effort to pronounce things well enough so that customers understood me better. Sometimes I even do it within the same conversation. Like most recently someone pointed out how quickly I switched from a more localized accent to a more formal accent within the span of a couple of sentences. It was kind of funny, but it also got me to realize about how it just happens without really having to think about code-switching.
Anand's relationship experiences. I realize that while there are people that I open up to to an extent, I'm never really fully myself with them. I think about all the friendships that I've let slip by and it pains me that I haven't been able to maintain friendships beyond settings I'm around people the most, the workplace. The friends I do still communicate with still feel like they are so distant. And I realize that a lot of it comes from the fact that I feel like I'm more of a burden or annoyance to them. I struggle with romantic relationships as well. Even now there's this great fight I have within my mind of do I open up to my crush and risk showing a side of myself that I feel they wouldn't like?
And feels so destructive. In recent times I've felt that mental strain imposing itself physically where I feel so tense just overthinking my relationships with people. I recently chatted with a friend on Discord. He told me to get a mic so I could have a voice chat with him. I eventually got it and its been sitting on my desk since. Every time I think about hitting him up to chat I just freeze from all the thoughts I have in my head. Similarly with my crush, who's shown me affection. Whether or not its romantic or platonic, it doesn't matter. Anytime I think of replicating it I just freeze up and end up thinking about it so much that I start to feel physically tense. There's nothing more that I'd like to do than to open up to the people in my life who have opened up to me, but its just so hard.
A lot about the trans and genderqueer community was eye opening. Especially in relation with how conservatives usually speak of them and the prevalence of autism in the community. As Dr.Price wrote about JK Rowling, I often hear the whole "trans people are just mentally ill or confused" from online conservative personalities and from my coworkers, both of whom are conservative. I also hope that as a whole the community of mental health professionals can move beyond such a limited way of thinking for trans and genderqueer people, much in the same way I hope they can change the way they treat POC and women.
The autism with comorbidity section furthered my understanding of how much overlapping there is in autistic traits with other mental health conditions and how its best not to approach autism with a "yes or no" way of thinking about it. Just talking with others and their life experiences can do so much to bring more clarity to what you may be feeling.
The paragraph where you talked about how you changed the way you spoke reminded me of my experience growing up with a foreign accent and having to change it when talking to my friends (which I still do). I remember the first it happened and what I said to get laughed at (I was 5), which prompted me to change my pronunciation and prosody as much as I could perceive my original accent. Then when I moved to another part of the country I was met with the same problem, but I felt I shouldn't change my accent again because I was too old and it would be weird, so I became more and more insecure every time I spoke. It got to a point much later (also thanks to the fact that I spent a year almost not talking to anybody at all) where I constantly doubted what I said and repeated myself on pretty much every second sentence and was having trouble with words I never had trouble with before I moved.
Thanks to what you said I started reading the book, and I also relate 100% to what you wrote in the first paragraph. The book made everything click, why I cyclically feel miserable about myself, how I regard myself as broken and hopeless and the despair I feel thinking I won't ever have a deep connection to any person in this world, not even the people I love the most, my siblings.
I think I'm autistic. Thank you, comrade