As per requests, this is my description of auDHD experience. As there is very little research into this, I'm going to draw primarily upon my own personal experience and I'll draw upon peer experiences and I'll draw in bits of research through this post here and there. I am diagnosed with both ADHD and autism, both adult diagnoses, and there is treatment history to establish these as being accurate diagnoses. The psychiatrist who diagnosed me with ADHD gave me a diagnosis of primarily-inattentive ADHD but I had come to my own conclusions that I was probably combined-type which has had its hyperactive aspects mostly buried under trauma. My psychiatrist also independently arrived at this same conclusion unprompted. It's worth noting that being combined-type will colour my experience of auDHD.

As a disclaimer, this is going to be my experience so it will be limited by that fact. This should only be taken as information and not the definitive guide or the be-all end-all of The One True™ auDHD experience.

To start, I think it's of fundamental importance to understand that my experience of auDHD is one of internal conflict - I have competing sets of needs and desires. This manifests in a lot of internal struggle and it also means that my autistic or ADHD traits can be more prevalent and I can feel "more" autistic or ADHD, depending on my circumstances. (Maybe I'm a Marxist because deep down, at a fundamental level, my ADHD traits exist in a dialectical relationship with my autistic traits lol.) This manifests in a lot of extremes and a lot of bouncing between one extreme to the other.

Ultimately this is why I think I was previously diagnosed with a mood disorder and why it's very common for late-diagnosed autistic/ADHD/auDHDers to be misdiagnosed with mood disorders.

So what does this look like in practice?

I thrive under most novel situations and under high pressure. I find it exciting and this really engages me. However, I also find that I hit my limit in high pressure situations very rapidly, so there's a sweet spot where things are just new or high pressure enough that I thrive. Less, I feel pretty bored and checked out. More, I become an anxious wreck.

However this is counterbalanced by my deep and abiding need for stability, routine, and structure. I need enough that I can count on in my life that I feel capable of dealing with high-pressure and novel situations. Too much change, especially unpredicted change, leaves me really rattled and out of sorts (and not just feeling a bit uncomfortable but it can put me into complete disarray). It can take ages for me to cope with too much change or unpredicted change because, although I can be quite adaptable and flexible, if my base circumstances change then the pace at which I find my feet again is truly glacial.

This is also sort of why I find that I am either extremely well organised or I'm an absolute disaster, with little room in between. Without having structure and organisation, my autistic needs aren't being met so I feel very dysregulated and I am far less capable of relying on this aspect of myself to manage my scatterbrained ADHD traits.

When it comes to socialising, I can be very gregarious. (It's worth mentioning that I'm pretty high-masking when I want to be, so that may also be a factor here.) I am capable of being the life of the party and of facilitating stuff like group work and educational spaces in an engaging and interactive way, and have done so professionally. But this comes with a high level of social anxiety and an extremely limited social battery. I find that I much prefer facilitating, or better yet public speaking, than I do participating in a group activity especially if it's unstructured or there are a lack of clear guidelines and expectations. So externally I vacillate between being very social to being extremely introverted, depending on a variety of factors.

Another aspect is that I genuinely do need a lot of time to recharge after socialising, even when it's great and I'm really enjoying myself. Sometimes days. I feel like this is very much my autistic needs taking the front seat.

With regards to interests, this is a little bit tricky on account of being combined-type but I have very long, stable persistent deep interests ("special interests" but I am loath to apply that term to myself tbh). I also have the classic ADHD sort of brief, intense, transient interests that breeze in and breeze out just as quickly. There are things that I will always be interested in doing or talking about, then there are things that I have a sort of wild fling with before I find that I've suddenly wrung all the dopamine out of it and I'm ready to discard it and move on.

I'm capable of bending my deep interests and sorta redirecting them to topics that I need to prioritise but I'm not sure whether this is a me thing, an auDHD thing, a combined-type thing, or something else.

With regards to sensory processing, I am a fairly typical autistic scattershot of being mostly sensory-avoiding with some atypically high degrees of sensory-seeking, as per the Dunn Sensory Profile 2 administered to me as an adult. I am acutely sensitive to a lot of sensory input however my ADHD is a countervailing force here and I can be completely oblivious to certain sounds or smells or tactile feelings until suddenly my awareness is drawn to this and it becomes borderline intolerable. This may also be due to me being high-masking, having poor interoception, or experiencing dissociation due to lots of trauma, mostly developmental so keep this in mind.

With regards to trauma and rejection sensitive dysphoria, there's evidence that ADHDers are more prone to developing PTSD symptoms. In my opinion one of the major factors in this phenomenon is the fundamental emotional reactivity inherent to the ADHD experience, especially if it's not appropriately medicated. My autistic traits lead me to ruminate a lot and so there's this unholy alliance that exists within me of my being more prone to traumatisation, having heightened emotional reactivity (even with regards to PTSD triggers that occur well after a particular event), and the classic autistic perseveration meaning that I get into ruts with my thinking that are very difficult to get myself out of. This is on top of the typical experience of PTSD and being emotionally and psychologically "stuck" in the traumatic experience. So it's a double whammy. Or maybe an exponential whammy idk.

I experience rejection sensitive dysphoria and I respond to treatment for it. I think that RSD in an auDHDer is especially difficult as being autistic means that I am just prone to making more faux pas, I'm going to unintentionally annoy or upset people, I'm going to miss cues, and ultimately that I'm going to face a whole lot more ostracism and social rejection than if I were allistic. So not only do I have a lot of the psychological consequences of trying to exist in a social world that is far from well-suited to an autistic person, I also have very visceral responses in my nervous system when I think I have fucked up or when someone gives me the impression of negative social feedback (whether imagined or real) and this has a pretty major impact on me. I am of the opinion that the ADHD traits that make me inclined to seek out social interaction and push me to be novelty-seeking means that I am much more socially engaged than I would otherwise be and since negative social feedback affects me unusually deeply, I think this is one of the major factors in why I am capable of being very high masking to the point of probably doing quite well at being neurotypical-passing if I care to.

It's my suspicion that most auDHDers are high-masking, not only because they tend to go undiagnosed and maybe even unaware of this personally for a lot longer and so they naturally develop strategies to compensate but because they tend to be more socially-oriented and I reckon they take knocks harder when socialising, all things being equal, so the end product is a person who is a sort of grizzled veteran who has learnt how to survive in the harsh wilderness that is the allistic social realm.

Moving on from that, I find that I am very extreme in how I experience fine details. I often plunge headlong into the deepest depths of detail but I am also quite careless and I can miss very obvious or critical details. I tend to shift between these two poles. Sometimes this also manifests in being so consumed by one aspect of the details that it's to the exclusion of all the other details as well, although that's more of a classic autistic experience imo. This might also be something specific to me but I am a voracious learner. Often I feel like my mind is like an odd-couple where I can get engrossed in a subject for virtually an unlimited period of time and I can be remarkably persistent with learning but I also have intense cravings for instant gratification and novelty which causes me to end up diving into one subject with great depth only to dive into the next soon after, and this pattern repeats itself constantly. It feels like half of my brain is constantly dragging me down one particular rabbit hole and the other half of my brain is desperately and impatiently dragging me to the next rabbit hole. This may also be something specific to me but I find that I'm actually quite a slow learner because of my needs to understand the intricacies of any given topic but, once I really grasp the fundamentals of something I tend to learn very quickly from that point onwards.

With regards to executive dysfunction, my experience is one of constant struggle lol. I feel as though I am constantly juggling too many balls - my need for novelty, my need for certainty and stability, my sensory diet, the need to stay focused and remember things, the need to observe the details so I don't make simple mistakes and so I don't find myself getting lost in any one particular detail, my need for routine and my fundamental incapability of maintaining a routine, attending to my interoception as I am very liable to not register that I'm hungry or thirsty or tired and so on. It feels like I am more or less constantly mediating the tensions between my different needs which often exist in direct contradiction to each other. So yeah, this means I burn out and I burn out hard lol.

I think ultimately my experience of auDHD is one where I can sometimes spot the very clear traits of either one shining through, such as struggling with pragmatics in communication and being completely capable of eating the exact same thing in perpetuity or being so forgetful and inattentive that I'll put my phone down in a drawer only to close it to later have zero recollection of what I did and having a real drive to experience new things. But more often it feels as though I am an odd mix of the two or that there's a sort of stalemate between the two and I feel like I'm kinda neither and yet both at the same time.

Sometimes this works really well, as my ADHD traits make me more adaptable and a bit more even in my interests and how I engage socially or as my autistic traits help me sustain my focus and to have a much better memory for things than I would otherwise have. I guess in short, being autistic keeps my ADHD traits more stable and consistent and my ADHD makes my autistic traits more flexible and it broadens my horizons. Each of them softens some of the rough edges of the other and I find that I can often lean into one in order to compensate for the deficits inherent to the other.

Unfortunately, the upshot of the autism and ADHD combo is that very often these needs compete and are in direct contradiction to one another as well. It's a weird sort of in between space to exist in, one where the only relatable parallel that I can think of that comes remotely closely is ennui - that feeling of being bored but where it's a conflicted or maybe a more existential sort of boredom; if you're just purely bored, you find something interesting or exciting and you have fixed the problem and the need has been addressed whereas with ennui there's a sort of restless interregnum-like quality where you experience a feeling of boredom but the thought of doing something exciting is also in itself boring somehow. That probably doesn't make a lot of sense lol. Also for my experience of auDHD it's not a feeling of being bored at addressing different needs but it's more like craving new things whie simultaneously craving the same things and the same routine, of craving excitement but also being overwhelmed and craving quiet and calmness at the same time. It's really quite odd to be honest.

Ultimately, while I identify with a lot of traits and experiences of pure ADHD or pure autism, I feel as though my experience of these are much more varied and they shift in intensity. I also think that the way that I present, even if I'm not putting in effort towards masking, is one where the traits of both are apparent but they aren't easy to pin down because I readily switch between, say, a classic autistic infodump monologue to being very socially-engaging and mischievous like you might expect from an ADHDer. Or I can be incredibly details-focused while also being seemingly oblivious to details. That sort of thing.

Anyway, I think that wraps up my own personal experience of auDHD from an internal perspective.

  • socialnuju [she/her]
    ·
    7 months ago

    if you're just purely bored, you find something interesting or exciting and you have fixed the problem and the need has been addressed whereas with ennui there's a sort of restless interregnum-like quality where you experience a feeling of boredom but the thought of doing something exciting is also in itself boring somehow.

    Contrary to what you said, this actually makes a lot of sense lol, and I think that all of what you wrote made me realize I really should get checked (for anything really). This sounds too close to home. Thank you again for sharing!

    Out of curiosity (and only if this should apply to you and you feel comfortable sharing): Does auDHD also interfere with your experience of sexual desires? Meaning, is there conflict in that regard between autistic desires and ADHD desires?

    • ReadFanon [any, any]
      hexagon
      M
      ·
      edit-2
      7 months ago

      Out of curiosity (and only if this should apply to you and you feel comfortable sharing): Does auDHD also interfere with your experience of sexual desires? Meaning, is there conflict in that regard between autistic desires and ADHD desires?

      Yeah, I'd say that it does.

      For me I find that I'm usually careening from one thing to the next - "Fuck I haven't eaten all day, I'm starving" to "Holy shit, I've been researching something for 5 hours straight and it's now 3am and I need to sleep. But also if I don't pee immediately I'm going to explode." and it just goes on like that a lot of the time. Maybe not always to that exact degree of intensity but I'm using some liberties to paint a picture.

      So I usually find that the most urgent need bubbles up to the surface for me and then that's the main focus until the time when something else bubbles up - it might be something really minor like my sock not sitting correctly on my foot, it might be external committments, it might be that a particular word has caught my attention and I need to understand its etymology. This also applies to my experience of sexual desire in a broader sense, in that I can be completely uninterested in sex because my focus is elsewhere, and this can go on for long periods of time, but then suddenly I find that my libido takes centre stage so yeah.

      I think one aspect of this experience of competing areas of focus or need is probably best explained by the bathtub metaphor (which is often applied to dealing with trauma) - if you can imagine a bathtub filled with water and kid's toys, when you go to empty it of toys, you pull one thing out and then something else emerges from beneath the surface to take its place. And on and on it goes, but eventually things stop bobbing up and you will find that you have emptied the bathtub of toys.

      I feel like that's a good metaphor for what it's like for me with my focus and my needs - something is at the top and once that gets dealt with then the next most urgent thing bobs up and so on. When things are good and I'm doing well at taking care of myself, my lower priority and less urgent needs get a chance to bob up to the surface with less pressure behind them because the tub isn't as densely populated.

      I guess what I'm driving at here is that when I'm more centred and I'm addressing my needs and I'm well supported, I find that my sexual desire is more even and moderate.

      is there a conflict between autistic desires and ADHD desires?

      That's an interesting question.

      I don't struggle with being in a monogamous relationship or with infidelity, so the ADHD need for novelty and excitement doesn't affect me in that respect.

      On a sensory level I often have a strong preference for good foreplay over sex, which I think is a bit unusual for someone who is amab.

      I'm not sure whether it's a product of being queer or of my particular disposition or whether being auDHD plays into this but I am pretty adventurous, so that could be the novelty-seeking aspect of ADHD's influence there. I also find that I'm not constrained by concerns about things like gender roles, which is a common thing amongst autistic people in a broader sense - it's not unusual for autistic people to be pretty agnostic about gender nor is it unusual for them to be unconcerned by stuff like social conventions and norms.

      I find whoever I'm with, I need good communication from them in order to feel genuinely secure and comfortable. Enthusiastic consent isn't necessarily shouted at the top of one's lungs, otherwise living in a sharehouse would be an especially hellish experience lol, and so when it comes to people who tend to be more meek in bed, I find myself checking in a whole lot more and I also find myself drawn out of the experience to attend to reading the other person's subtle and nonverbal cues to ensure that I'm not missing something so, in a sense, this is where my autistic traits can be kind of annoying and I end up seeking reassurance that I have the green light perhaps a bit excessively under these circumstances as well (that sounds problematic but I don't mean to imply that it's possible to have "too much" consent but rather that it can be frustrating for the other person who is like "I already said yes to that twice, what's the hold up??") So my need for direct and unambiguous communication can be something that draws me out of the experience with people who are less assertive, which is fine btw - I'd rather be drawn out of the moment every time than to overstep a person's boundaries unintentionally, but this probably also draws the other person out of the moment somewhat as well because I might find myself asking them a lot of questions. Once I am more familiar with how someone communicates in bed obviously this becomes less of an issue though. When it comes to people who are confident and assertive, my communication needs are rarely a cause for annoyance because the communication from them is usually extremely clear and direct.

      I don't find my autistic need for routine or for following a set procedure to come into play with regards to sex. I can be really fucking oblivious to the subtle (and maybe some not-so-subtle) indications that a person wants to have sex with me, even if they happen to be long-term partners.

      This is something that I've never really thought about until you asked. Hopefully that answers your question.

      • socialnuju [she/her]
        ·
        7 months ago

        It does, and thank you! I can relate a lot to what you said, especially the bubbling up of "new children's toys". And I would also definitely agree that you cannot ask for consent too often. Rather interrupt the moment than be uncertain or ambigious about it.