Hi Everyone!

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Alright, with that out of the way, let's talk about COVID-19, specifically the kind that messes with you for long time, possibly forever! <-- (so fun /s)

From the Wikipedia Page on Long COVID:

Long COVID or long-haul COVID is a group of health problems persisting or developing after an initial period of COVID-19 infection. Symptoms can last weeks, months or years and are often debilitating. The World Health Organization defines long COVID as starting three months after the initial COVID-19 infection, but other agencies define it as starting at four weeks after the initial infection.

Long COVID is characterized by a large number of symptoms that sometimes disappear and then reappear. Commonly reported symptoms of long COVID are fatigue, memory problems, shortness of breath, and sleep disorder. Several other symptoms, including headaches, mental health issues, initial loss of smell or taste, muscle weakness, fever, and cognitive dysfunction may also present. Symptoms often get worse after mental or physical effort, a process called post-exertional malaise. There is a large overlap in symptoms with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The causes of long COVID are not yet fully understood. Hypotheses include lasting damage to organs and blood vessels, problems with blood clotting, neurological dysfunction, persistent virus or a reactivation of latent viruses and autoimmunity. Diagnosis of long COVID is based on (suspected or confirmed) COVID-19 infection or symptoms—and by excluding alternative diagnoses.

As of 2024, the prevalence of long COVID is estimated to be about 6-7% in adults, and about 1% in children. Prevalence is less after vaccination. Risk factors are higher age, female sex, having asthma, and a more severe initial COVID-19 infection. As of 2023, there are no validated effective treatments. Management of long COVID depends on symptoms. Rest is recommended for fatigue and pacing for post-exertional malaise. People with severe symptoms or those who were in intensive care may require care from a team of specialists. Most people with symptoms at 4 weeks recover by 12 weeks. Recovery is slower (or plateaus) for those still ill at 12 weeks. For a subset of people, for instance those meeting the criteria for ME/CFS, symptoms are expected to be lifelong.

Globally, over 400 million people have experienced long COVID.

Mask up, love one another, and stay alive for one more week.

  • hexbee [she/her]
    ·
    1 month ago

    I had a nice dream last night (as in, not a nightmare), which is a legendary rarity event for me. I was in some different world without covid, with a light rail in my home town and living a life where I have people around me that I'm connected to. All that happened was that I went to some kind of organising event and stayed a while after to chat with friendly folks. Casual physical touch, which would make me panic irl felt pleasant and welcome. Afterwards I took the light rail back home and ran into one of my most treasured friends who was on their way somewhere else. That's it, that's the dream... It sucked so bad waking up into hellworld, and realising that the time to start working to make this dream a real possibility was years, if not decades ago. Taking a moment to grieve that future by typing this up I suppose. Hope everyone is doing alright out there