https://www.forbes.com/sites/jackkelly/2022/03/15/unless-we-future-proof-healthcare-study-shows-that-by-2025-75-of-healthcare-workers-will-leave-the-profession/?sh=6314de952bcb
https://www.forbes.com/sites/jackkelly/2022/03/15/unless-we-future-proof-healthcare-study-shows-that-by-2025-75-of-healthcare-workers-will-leave-the-profession/?sh=6314de952bcb
I bet (while being no expert in the field) that your disease is stoppable, reversable or even fully curable with a couple years or even just months of approprate diet and maybe some other lifestyle adjustments. The problem is that the average doctor is trained to sell chemistry and - even when not financially motivated - see pills and stuff as solutions to everything, at least from my experience.
There is so many places i could "send" you to, no idea...say maybe try spending a couple hours on https://nutritionfacts.org/ using search by keywords typical for your disease!?