No fancy OP this time because I am running on E! I'm definitely not a couple of days late! This week's person of interest is you, dear reader. Tell this fat frog lady all about your lovely selves this week. Tell me what makes you laugh and what brings you joy in this hell on earth we call home.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I love your ornament
I'm really impressed at you doing fussy cutting for your first project and keeping your stitches so evenI totally get the strain from pinching the hexies together while you sew, not beating the ad allegations but the site i keep linking you to has "sew tites" which are magnets that are really helpful for epp. I got the variety pack with different length bars which is really helpful for sewing hexie flowers. Unfortunately they suffer from the same useful niche sewing tool tax that all the new gadgets have 😭
Here's a hexie flower I did recently
spoiler
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i saw a good handful of people masking today when i went out to get my vaccine 🥰
My time blindness has been acting up and the class I am taking has now instituted a zero grace period policy. Death to america.
I've just had my local pharmacist shame me for being a drain on NHS resources. I take various different meds, some for my cancer treatment but most for dealing with side-effects caused by the cancer treatment. Some to prevent me from having another stroke. One of the issues I've been dealing with is severe migraines, with blindness, vomiting and excruciating pain lasting up to three days at a time. I've had various different treatments for this, including nerve blocking injections in my head, but the only medication that really helped was rizatriptan.
However, rizatriptan isn't suitable for people who've had strokes, so they won't prescribe it any more. So it was back to the neurologist, trying various different treatments and meds until I was, a few months ago, prescribed rimegepant. This is nowhere near as good as rizatriptan, but it does help. So for the past couple of months I've been having this and I just went to get my most recent prescription filled.
The neurologist said I can take one every day as a preventative but the GP's surgery have been refusing to prescribe me more than 8 a month. They wouldn't say why, but today when I went to collect my prescription, the pharmacist had a go at me about the cost of the medication. I was literally just standing there waiting for it, and totally unprovoked he came out, handed me the bag and just started loudly complaining in front of all the other people about how this medication is too expensive, and his general tone and demeanour clearly said that I'm being a selfish drain on NHS resources, although he didn't dare actually say that in words.
I got home and googled the cost, it's £12 per tablet. Logically I know it's not my fault I need meds, but I just feel really ashamed and guilty now for being prescribed this. Maybe this explains why the GP surgery won't prescribe me one as a preventative each day. I'm wondering whether I should even bother to keep getting this prescription filled if the people at the pharmacy think so badly of me for taking it.
This isn't even the first time the NHS has complained about the cost of my meds. Some years ago, before my stroke when I was still taking rizatriptan, they tried to change me to a cheaper med, one I'd already tried that didn't work, saying rizatriptan was too expensive. (It's like £2 a tablet). I begged the woman not to change it and when she said she was changing it, I broke down in tears at the thought of going back to 3 day long torturous migraines. She actually laughed and told me to stop being dramatic, but in the end after getting advice on how to deal with her from people online, she agreed not to change it.
It's the same with receiving disability benefits, having to go through endless assessments and appeals, being given zero points and having my payments stopped, being left hungry and destitute. Again and again, this society shows me that i am nothing but an unwanted drain on resources, selfishly sponging off working people. Yet, they won't let me have a peaceful and painless exit. If assisted suicide was legal and free on the NHS, I would take it. They would save money then. But no, I can't access that service. They even make DIY suicide difficult by making the easier methods illegal and difficult to obtain. Just - what do they want? They don't want me dead but they don't want me alive either. I have two risk factors for stroke - my cancer treatment and my migraines, and I've already had one stroke at a young age. They tell me I'm at risk of another. Keeping my migraines to a minimum makes the chance of another stroke less likely and if I do have another it could be more severe and more life changing if I keep having uncontrollable migraines. Then they'll have to spend even more money on me.
Sorry just a rant because I'm feeling like worthless trash after my trip to the pharmacist. Just legalise assisted suicide and kill me already. But this society are cowards. They don't want to say "Yes, let's kill you as you're disabled," because they don't want to sound like nazis. So instead they slowly kill us by denying our benefit claims, leaving us homeless and hungry, changing our meds to cheaper ones that don't work and whatever else they can think of to get rid of us without making it look like societal murder.
The neurologist said I can take one every day as a preventative but the GP's surgery have been refusing to prescribe me more than 8 a month.
Similar story here. The neurologist prescribed me 18 a month, insurance (even via Medicaid) would only give me 8. But it's $75 per pill or more in the U.S.
she looks like she's pretending to be the loch ness monster lol
I found a YouTube link in your comment. Here are links to the same video on alternative frontends that protect your privacy:
God, I even saw the mod chat about asking us for mega post ideas and I literally am out of spoons. I still have one I want to make but I've been working a ton, and it's physical work so by the time I'm home I'm already passing out. Thanks for picking up the torch, Ivy!
About me:
I am super late diagnosed autistic. I also have dysthymia, fairly severe social anxiety, and some tag-alongs like pathological demand avoidance, rejection sensitive dysphoria(sort of I think), and probably some more that will eventually manifest.
My hobbies include web dev, horror movies, video games, and reading theory. Those sort of also cover quite a bit of my special interests. I've been into horror movies for over 3 decades. I started reading again like 2 years ago an haven't really stopped. I'm just super deep into socialist texts and don't see any way out any time soon. I used to also speedsolve Rubik's Cubes and have been a Linux hobbiest for over a decade. Oh I also like angry music and tiny mechanical keyboards. Typing this on my Ferris Sweep currently.
Speaking of web dev, I'm working on doing the freelance web dev thing. My free time right now is limited with work but I'd like to try to get a site a month done. My stack is AstroJS, TailwindCSS, TypeScript/JavaScript, and DecapCMS currently. I handcode my sites and don't use builders like WordPress, essentially. I'm actively trying to network but just can't get a nibble on a site. If you know anyone that needs a not shitty site made and don't mind it being made by a dirty commie send them my way lol.
Recently I've been doing my own gender exploration and I think I am gonna go with Demi/agender-ish for now.
I'm also in the middle of my PSL candidacy and am gonna try to get something going in the Texas panhandle.
Idk, I'm tired. I might rework this later but just call it stream of thought for now.
Love you all, stay safe out there.
Changing antidepressants. Currently discontinuing and I'm not getting any major symptoms aside from being way less tolerant of minor discomfort. I also feel like.. 40% more autistic than usual of that makes any sense. I'm on my break and I've been mumbling and tripping over my words all day with customers. Idk if that's the med change but I'm blaming it on that.
I wanna go home and play.. Idk monopoly or something
I also feel like.. 40% more autistic than usual of that makes any sense
it absolutely doesI went home and played monopoly. I'm about to win against the dastardly cat
