I work in healthcare and i am currently working with a hydrocephalus baby. Well, a child now.
So for thess last few years millions have been spent to keep thsi child alive. They never grew most the brain so they factually cannot be happy, but they still can feel pain and be miserable.
So we have giant expenditure od resources both governmental and systemic to produce negative quality of life. While people are dying for want of even a fraction of that.
Dubious and industry standard. She will probably live till her teens on life support. Several million in hospital fees. Patient and family severly miserable the whole time.
Thr alternative is to take her off life support, to kill her, and her parents cant bear to do it.
America, yeah. It covers most of it probably all of it.
There was a famous case in England whre a similar case was refused treatment on the grounds it was unethical to waste resources for no improvement or gain. Chuds were mad
This is one of those things I might end up cancelled for, but I don't think all disabilities are equal to Autism or even Downs. Sometimes it's the far more cruel option to keep someone alive. A life staring at the ceiling and shitting your pants isn't much of a life at all.
I also am selfish enough to not want my entire adult life dictated by taking care of a special needs child.
As an example this patient just suffered an injury.
The curtains were left open and she stared directly at the son for sevsral hours. There are children who will grow up blind for want of a cornia transplant and she doesn't have enough brain activity left to blink.
To be fully cold, her organs, could save nine children or so. And children's oranans for transplat are even more rare than adult organs.
All this so her parents can spend the next handfull of years watching her body painfully decay. Which is just burtal for all parties involved
Oh my god, it would be an absolute failure of the system if she got a cornia transplant.
I've obviously never been in the position of the parents, but if i was, I would hope i'd be brave enough and have enough mercy to not keep a suffering child alive.
Nah, she won't get one. But it the whole thing is soul crushing in a way no person should have to shoulder and in most civilized medical systems there are structural supports to make sure people can get through it
Me and basically everyone I have worked with the medical field have internalized about doing cold calculations on quality adjusted years of life We don't normally talk about it with laypeople.
A conversation about when I pulled the plug on X relative and why not lite one you know? However we are all very much on the side of pulling the plug when there is no reasonable expectation of a continued acceptable quality of life
I work in healthcare and i am currently working with a hydrocephalus baby. Well, a child now.
So for thess last few years millions have been spent to keep thsi child alive. They never grew most the brain so they factually cannot be happy, but they still can feel pain and be miserable.
So we have giant expenditure od resources both governmental and systemic to produce negative quality of life. While people are dying for want of even a fraction of that.
Feels bad man.
like what are the ethics of this
Dubious and industry standard. She will probably live till her teens on life support. Several million in hospital fees. Patient and family severly miserable the whole time.
Thr alternative is to take her off life support, to kill her, and her parents cant bear to do it.
Does their insurance cover the care(if you're in a uncivilized country)?
America, yeah. It covers most of it probably all of it.
There was a famous case in England whre a similar case was refused treatment on the grounds it was unethical to waste resources for no improvement or gain. Chuds were mad
This is one of those things I might end up cancelled for, but I don't think all disabilities are equal to Autism or even Downs. Sometimes it's the far more cruel option to keep someone alive. A life staring at the ceiling and shitting your pants isn't much of a life at all.
I also am selfish enough to not want my entire adult life dictated by taking care of a special needs child.
As an example this patient just suffered an injury.
The curtains were left open and she stared directly at the son for sevsral hours. There are children who will grow up blind for want of a cornia transplant and she doesn't have enough brain activity left to blink.
To be fully cold, her organs, could save nine children or so. And children's oranans for transplat are even more rare than adult organs.
All this so her parents can spend the next handfull of years watching her body painfully decay. Which is just burtal for all parties involved
Oh my god, it would be an absolute failure of the system if she got a cornia transplant.
I've obviously never been in the position of the parents, but if i was, I would hope i'd be brave enough and have enough mercy to not keep a suffering child alive.
Nah, she won't get one. But it the whole thing is soul crushing in a way no person should have to shoulder and in most civilized medical systems there are structural supports to make sure people can get through it
Me and basically everyone I have worked with the medical field have internalized about doing cold calculations on quality adjusted years of life We don't normally talk about it with laypeople. A conversation about when I pulled the plug on X relative and why not lite one you know? However we are all very much on the side of pulling the plug when there is no reasonable expectation of a continued acceptable quality of life