We just walked out and quit the study today. Stanford medical dropped all masking requirements and the researchers running the long-Covid paxlovid study have stopped masking while tending to long covid participants. It’s frankly abhorrent, selfish behavior, and not only does it demonstrate a complete lack of regard and understanding for the illness in question, in my opinion it calls into question the legitimacy of the entire study. We’ve been traveling hundreds of miles for months in order to try to participate in their study and provide THEM with data about the illness, and this is what they think of us. Just want to make everyone aware in case you also have the misfortune of being a participant.
EDIT: Aside from the obvious lack of regard for the safety and well being of their patients/subjects, I should point out that this is also just a terrible choice for the study. Want to know how to get consistent study results? I'll give you a hint: it doesn't involve dramatically changing the study conditions 3/4 of the way through. Not only are they callously risking people's health, they risk invalidating the entire project and its data by suddenly increasing the odds of reinfecting their participants and negatively changing the course of their health.
It’s fucking infuriating. I had a doctor i wasn’t even seeing long term end my Xanax prescription because he thought I was an alcoholic.
1, I’m not an alcoholic, and wasn’t in the hospital for anything related to alcohol, I was in for depression and suicidal thoughts. They put me in the substance abuse unit because the psych unit was full.
2, Alcohol and Xanax are not the same thing! Having an alcohol abuse problem doesn’t make me suddenly likely to abuse Xanax that I haven’t been abusing for the last few years because I don’t like the feeling of Xanax