Unfortunately I don't have the energy to put together some info for the mega this week, hopefully I can pull together something for next week though. As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Ablebodied peoples idea of what ableism is is so performative and out of touch
Like they'll tone police but won't wear a fucking mask
"You need to vote for harm-reduction Harris!!" they shout at us, from their unmasked faces.
I talked with some union people at my workplace, and I asked them if they plan to resist the full return to office that is coming. I shit you not, they welcomed the news (they were clueless) because "we will communicate and work better" [sic].
They only really care about their higher wages and people like me can fuck off and die I guess. I don't know why I expected solidarity from neurotypicals. It's shit like this that completely discourages me from organizing
I am currently in "dead fish flopping about gasping for air" mode. I'm lying flat almost all hours of the day unless I manage to somehow force myself into a sitting position (usually just to eat food). I've been skipping most of my classes because I'm too tired to crawl out of bed, let alone get myself across campus and into a chair where I have to sit upright for over an hour. I'm brain fogged to the point where trying to do anything besides watching mindless videos is too much exertion for me. I hate this so much. I feel utterly useless because in my current state, I essentially am useless. Every day is a drag yet also too quick at the same time. I just wish I had my old energy back.
that sounds awful.how have your teachers been? are they being understanding about your struggles?
I want all "it was just a prank" excuses to be invalid forever. It has ableist implications IF it is genuine, which it NEVER EVER IS, so its just reactionaries being cowards
I hate being reminded of the fact that I can't perform fine motor functions. I've gotten used to it when journaling, even though I can't really read my handwriting, but I was trying to do a lab today and just kept fumbling and messing up the setup. I couldn't help but constantly apologize to my lab partners almost constantly, and once they finished with their portions they had to help with mine, and I essentially had to step back and do other parts of the lab work. Ugh
Too autistic for the autistics strikes again
Bless you, I find it's hard to not put myself down when I'm not able to do things that seem so simple for those around me
u receive : back problems & nerve pain
i receive : hug
I've already got back problems and nerve pain, what now?
hmm. maybe it's like a krenko, mob boss situation where ur just producing more of the same at an explosive rate? maybe u would become a superhero; the proportional hurdles of two disabled people!!!
My workplace intends to enforce full return to office to improve our discipline, meaning no scheduled remote days but we might be able to get some as needed? Not clear enough.
This is probably going to destroy me, I don't know if it is some autism sensitivity but office days tire me to the extent that even with 3/5, I often feel so miserable that I take a paid leave just to not go there. I don't understand how neurotypicals do it every day, it seems impossible to me
the doctor agreed that EDS testing was worthwhile and referred me to a geneticist 🎉
and I only cried a little bit during the appointment so 🎉🎉🎉 😂
she was mostly very nice, but there were a couple of moments where I could feel her getting skeptical and I started getting overwhelmed, and I'm very glad I had the pleasantly stoic @shadowinlight@hexbear.net along to jump in to help explain things
Unfortunately I don't have the energy to put together some info for the mega this week
If you want I've just uploaded the audiobook version of Exile and Pride Disability, Queerness, and Liberation by Eli Clare to TankieTube and there's a PDF copy of the book available here. I haven't read it yet but it looks interesting.
Here's the publisher's synopsis:
First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.
If you like the sound of it, you're welcome to copy this along with the links into the body of your post as a substitute for other content. If you do I'll delete this comment so it's not clogging up the mega unnecessarily.
Folks, this is it... I finally got prescribed Vyvanse after six months of just fucking around with Wellbutrin! I'm super excited and eager to see what happens!
But that's not what I'm here for right now. I've been playing with a story in my head for a very long time and I really want to start writing it. The thing is, the way I envision one of the characters includes the fact that she's hard of hearing. I want to be as respectful as possible of such a person's life experience and I want to research what everyday life is like for someone with impaired hearing. Can you folks suggest any sources for me to do some reading up on the topic? Anyone who talks about their life without hearing? Any interesting stories with a deaf/hard of hearing main character?
I can't believe this. I'm booked in to have a minor surgery on my feet to clear up infected skin that has failed to respond to other treatments. It's on the NHS so the surgery is free, but they just told me I have to pay for a pack of dressings to take home (as the wound needs the dressing changed every day and the pack apparently contains something to keep the dressings dry in the shower.) This pack is bloody £37, and I have to buy two as both my feet are having the surgery. I can't be the only one who thinks these packs should be free along with the surgery? And where am I supposed to get £74 while going through a benefit appeal? Just when I think life can't get worse, it finds a way. Being ill/disabled is so bloody expensive!
Of course they should be free, that’s ridiculous. Maybe comrades in the mutual aid com can help you out.
I'm worried about accepting money though, because the DWP are checking people's bank accounts and I don't know how I'd explain why someone was putting money in my account.
This is what I'm worried about and why I don't feel I can accept money. What did they say/do about people who sent you money? And how far back did they go? Was it on the phone?
Did they investigate these family and friends, or did you need to prove they were family/friends?
do the dressings have to come from them, or could you take others in with you and have them verified as sufficient?
She said I can just buy them off amazon, but that doesn't help, because I've checked on there and they are just as expensive and I don't have any money at all. However someone on here gave me the idea to ask if my medical exemption certificate would entitle me to free dressings, so I've sent them an email about that and I'm waiting to hear back.
if that doesn't work out, let us know. I know we had a hard time finding someone who could help you with an Amazon purchase because accounts don't cross regions, but we can try again. ❤️
i have to go out today. i've had horrible neck pain for days but there is medication at the end of the drive if i can manage it that will help. and gotta get food n stuff too. but it's so frustrating. life is constantly like need x to do y, need to do y in order to acquire x
